Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability

ISBN: 9780521539715 出版年：2005 页码：287 Wasserman Bickenbach Wachbroit Cambridge University Press

Contributors Acknowledgements Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit 2. Predicting genetic disability while commodifying health Anita Silvers 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord 6. Preventing the existence of people with disabilities Jeff McMahan 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman 8. The social context of individual choice Tom Shakespeare 9. Disability and health systems assessment Jerome Bickenbach Index.